Kidney transplant recipients forced back on dialysis

Partner: 
Summary: 

A flawed Medicare policy has contributed to the suffering of American kidney patients for decades. While the federal entitlement program covers a lifetime of costly dialysis treatments, it provides only 36 months of anti-rejection medications that kidney transplant recipients need the rest of their lives. Without the drugs, the kidney fails and recipients return to the dialysis regimen, sometimes waiting years for the next kidney transplant. The counter-intuitive policy keeps patients in a U.S. dialysis system with some of the worst mortality rates in the world, and wastes the precious resource of donated kidneys. It can cost taxpayers millions more in the long run. Yet, attempts by lawmakers to remedy the problem have been defeated by lobbying from a multi-billion dollar dialysis industry that wants to ensure that monies for the transplant drugs do not come from the government's dialysis budget. Among the key lobbyists is dialysis drug maker Amgen of Thousand Oaks.

Impact Summary: 

A flawed Medicare policy has contributed to the suffering of American kidney patients for decades. While the federal entitlement program covers a lifetime of costly dialysis treatments, it provides only 36 months of anti-rejection medications that kidney transplant recipients need the rest of their lives. Without the drugs, the kidney fails and recipients return to the dialysis regimen, sometimes waiting years for the next kidney transplant. The counter-intuitive policy keeps patients in a U.S. dialysis system with some of the worst mortality rates in the world, and wastes the precious resource of donated kidneys. It can cost taxpayers millions more in the long run.

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John Gonzales and Tom Kisken | July 24, 2011
The tan and white capsules that allow 19-year-old Matthew Kinney to live a normal life with a transplanted kidney lay on his kitchen table in a paltry cluster.
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John Gonzales and Tom Kisken | July 24, 2011
Ventura County's largest private employer built its empire on a miracle: a drug that reduced the need for blood transfusions among legions of American dialysis patients and their suffering counterparts worldwide.
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John Gonzales and Tom Kisken | July 24, 2011
Medicare: 1-800-633-4227
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John Gonzales, CHCF Center for Health Reporting | July 24, 2011
In a room at Los Robles Hospital & Medical Center, Sheryl Glatt lay with 40 surgical staples climbing her withered thigh, and a lower leg undergoing a battery of attempts t
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Tom Kisken, Ventura County Star | July 24, 2011
An hour before sunrise, Jeannette Castaneda unfurled a bed sheet over a reclining chair to keep pale green vinyl from clinging to her arms. She huddled under a blanket as a technician jabbed her with a needle, leashing her to the machine that does what her kidneys cannot.
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Ventura County Star | July 25, 2011
The situation is illogical, shocking and infuriating — but somehow, it's not totally surprising in the world of health care.
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Lauren M. Whaley, CHCF Center for Health Reporting | July 25, 2011
Sheryl Glatt, 50, received 15 surgeries to restore feeling in her left foot. She suffers from advanced diabetes, neuropathy and kidney failure. She undergoes dialysis four times a week. Photography, audio and slideshow by Lauren M. Whaley/CHCF Center for HealthReporting.  
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John Gonzales and Lauren M. Whaley | January 3, 2012
This story originally appeared in the Ventura County Star newspaper on December 24, 2011.
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Lauren M. Whaley | January 12, 2012
I didn’t know Sheryl when she wasn’t sick. I didn’t know her as a preschool teacher, a mother, a churchgoer or dialysis support group leader. Every time I saw her, she was in a hospital bed, tethered to a dialysis machine or in a wheelchair en route to a doctor’s appointment.
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John Gonzales | April 16, 2012
Immediately after publication of this story, Sen. Richard Durbin of Illinois introduced legislation that would increase federal support for anti-rejection drugs.  No action has yet been taken on his proposal.  This project won an honorable mention award from the Association of Health Care Journalists for 2011.